Case Studies
The Challenge
Communication breakdowns between healthcare professionals (HCPs) and patients hinder effective care, especially for rare diseases like Myasthenia Gravis (MG). Traditional Continuing Medical Education (CME) often overlooks the behavioural and psychosocial dimensions of patient experiences, resulting in gaps in shared decision-making (SDM).
MG patients frequently report fluctuating symptoms, emotional isolation, and the need for constant adaptation. On the other hand, physicians struggle to connect these lived experiences with treatment strategies, creating a mismatch in communication and care priorities.
The Challenge
Cancer patients hold invaluable expertise through their lived experiences, yet their voices often remain marginalised within research. Traditional approaches prioritise complex data and academic findings, leaving patients underrepresented in key processes. This results in research that can lack the nuance and patient-centred insights needed to drive meaningful change.
Key challenges included:
- Limited mechanisms for patient involvement in research design and dissemination.
- Minimal representation of patient voices at global conferences.
- Lack of formal recognition for patients’ contributions as partners in the research process.
The Challenge
The Diana Award’s mission is to empower young people through mentoring, anti-bullying, and social action programmes. However, the organisation needed a clear framework to show how its activities contribute to long-term societal change. Without a cohesive Theory of Change (ToC), it was challenging to effectively communicate the strategy and impact to funders, partners, and stakeholders.
